Thursday, May 30, 2013

Therapy for Jer

So the long and short of it is Jer will NOT be receiving applied behavior therapy at home, for now. The regional center saw that Jeremy is not in need (which I guess is a good thing) but that they want to send me to a 1 day parent training course. I however do NOT agree with this as his only option. I should have been sent to this class a long time ago, honestly speaking.
These people upset me. They don't really care, even though they say they do. At the end of the day it's all about money. I'm well aware that there are kids in my area who need these services more than Jer and maybe they aren't also going to school like Jeremy is but at the same time, someone needs to figure out how to get these services to EVERYONE. 
I just don't like how the whole system works. But for now I need to do what I need to do. 
Jeremy is off for now. He returns to school for a summer session starting June 10. The session ends July 18 and then he will be off until mid August I think. 
At this point, school is his only form of therapy. He needs more! 
So frustrated with this whole thing!

The good points are that Jeremy is getting more and more verbal. He (for now) has stopped playing with his feces, his tantrums are less intense and are shorter and he has for the most part stopped biting people. I'm hoping it's not just a phase but that the school is really helping in correcting these behaviors. 

The two things he could use behavior therapy for is running off and potty training but quite honestly I'm feeling that most of that is a 3 year old thing. And the fact that he's so stubborn!  

That's all the news I have for now. 

Hope everyone is having a great week =)

Sunday, April 7, 2013


Hi all. It's been over a month since I've kept in touch about Jeremy. Things have been going along well. The need for more therapy is apparent. And thank goodness for insurance now paying for services! Behavioral therapy should start up again in the next 2 weeks or so. And we are so happy because we saw the most change in him with that therapy.
He had his first speech therapy appointment last Monday and he'll have his first occupational therapy appointment this coming Friday. Each of those is once a week. I'm hoping the regional center will help us cover those co-pays too since Kaiser is suggesting them for his Autism. The regional center is in the process of approving co-pay assistance for the behavioral therapy.

Anyway...there are changes on the horizon that are exciting and that I can't quite speak of yet. So stay tuned.

Jeremy is coming along awesomely with new words that he imitates. We are working on non-verbal commands and hope that therapy will start to guide us in the right direction so that we can at least start communicating in the simplest ways. We know it's all there...we just have to find the way to get to it in that beautiful brain of his : )

Wednesday, February 13, 2013

Quick update

-Jer is having a blast in school. Today, however, he had a rough time for about an hour. I got a call from the school at 9am.  His teacher said he wasn't wanting to do any of his normal stuff and was trying to leave with his back pack (cute!) The teacher gave him 20 more minutes to calm down, which he did.  When he came home he had a nice nap on the couch.
-Yesterday I had to vacuum the living room really quick. I usually wait until Jer is at school to vacuum but HAD to right then (long story involving poop). He usually starts freaking out, crys and runs around, almost a full meltdown. Well yesterday all he did was stare at it, run around and then go try to seenit after I put it away! Like Hal said...that's progress!
-One more quick thing: services for Jer (Occupational and speech therapy) are going to start in a few weeks. We have an intial evaluation on Feb 28th. We are very happy this is all coming together. And it's all being paid for by this wonderful state we live in :-)

Till next time!

Monday, February 4, 2013


The first week of school went so well! With the exception of his impatience with how fast we get him on the bus, he is right on schedule with waking up easily at 6am, getting dressed and eating breakfast. Haven't yet incorporated teeth brushing yet because he's usually eating while walking out the door and it's only been 2 months since being okay with getting his teeth brushed. So maybe we'll brush teeth when he gets home!
When he's dropped off at about 12:30p, he's usually asleep and rarely stays asleep once I put him down in his bed unless he's completely out. But he's getting to that age where if he naps more than an hour it takes him longer in the evening to fall asleep which makes for a rough morning.
All in all he's doing quite well with all this change!!
The next juncture is additional services provided by Kaiser which will start in the next few weeks. Don't know how all that will work out but I'm hoping it will involve us meeting other families with our same situation. Been having lots of scheduling conflicts with the local meetup group that I hope will end soon. There are a few events coming up that I hope we can attend.
That's all for now.

Monday, January 28, 2013

Jeremy's 1st day of school!

Today was Jeremy's first day of school. We dropped Ian off at school earlier than we usually do so that we could get Jeremy to school in Manteca by 8am. I was ever so happy to have Hal with me to do this because he hasn't had the opportunity to get that involved with all that has been happening with Jeremy.

When we walked in to the classroom his teacher took him directly to his strip of cards and picked up the first blue card and walked him over to the play area where he was helped to place the card with velcro on the back to another blue strip. This will be the routine every day. Whenever there is something new to do they will direct him back to his own strip where they will take a card and bring it to where he goes next. He barely noticed us leaving and did not cry at all. Although I almost cried, and probably will, eventually. While I'm excited about the extra time I have to myself 3 mornings a week, I am going to miss my Jer Bear when Hal isn't here. My babies are not really babies anymore. Ian is going to start Kindergarten this year and will turn 5 in July!!

Because of this easy transition, we decided that tomorrow he would ride the bus to school and back home. The bus will come through the gate out on the street and greet us at our door, put the car seat on the bus then strap him in and leave and do the same when he comes home. We have to be ready at 6:45am for pick-up. After he's picked up on MWFs I will then drop Ian off at school. For the first time since before Jeremy was born, Ian and I will have time together in the morning to do the things we don't often have an opportunity to do with Jeremy (Zoo, McDonald's play place, bike rides, going to lunch). Jer and I will still have our own time as well which is awesome. All of these new beginnings and changes are good and long over-due. Especially the time I will get with just Hal on the one day a week he will have off where both boys are at school (until summer time for Jeremy)

Jeremy is still improving every day, and still amazes us with his smiles and laughter.

Wednesday, January 23, 2013

Jan 23-Update

Yesterday we received a call from the school Jeremy will start attending next week, McFall. He is all set to start school next Monday. I will drive him to school and pick him up for the first day to see how he does. On Tuesday he will be picked up by a bus that will transport him to school and back home. He will sit in his car seat on the bus. He tends to go with the flow, which is a great quality for a child with autism, so we aren't too worried about how he will do with it. He has been on a bus with us before and enjoyed it. He tends to enjoy his car rides anyway. It will just be a matter of adjustment to not having us around, which, at some point is something that he has to be okay with. I think he is ready!

Today we have an appointment with the Autism Department of Kaiser in Rancho Cordova. Just Jeremy and I. Not sure what will come of the appointment. If it begins additional services then I'm ready for it. I have all the paperwork I was sent filled out and all the assessments and evaluations that have been conducted over the last few months all ready to go.

Over the last few weeks since Therapy ended, Jeremy's vocabulary has grown so much! There has been so many more words, much more eye contact, less tantrums, more cooperation and lots more playing and laughs!

Now off to get ready for the appointment!

Tuesday, January 15, 2013

Jeremy is emerging!

Jeremy is almost a different kid. It's amazing. Words are just flying out of his mouth all day, he makes more and more eye contact and he's engaged more. It's amazing! I knew my little blue-eyed boy was in there somewhere!

The school he will start attending in about a week or so is a special education school, mostly for children with Autism. He will start out in a 1:1 setting with an instructional aide in a classroom. The school is located in Manteca, where Hal and I lived 6 or so years ago. It's about 20-30 minutes south of us. He will eventually be transported there by bus, in his car seat. He will attend everyday of the week between the hours of 8am and 12 pm. In 2 months they will review his goals and see if he is capable of 2 additional hours a day, totalling 30 hrs a week! It will be totally new for him but I know he'll love it and do great!!
This is the outcome of the IEP meeting last Thursday. Because Linden's school district is so small, they have to send the special needs students to a school that is ran by the County. He will stay here until he is ready to be mainstreamed or sent to a special day class.
We are nervous and excited for him but we know this is the best right now. We may also receive further services through the regional center as well as through Kaiser since medical insurance can now start covering these types of services. We have an appointment with Kaiser on Jan 22 in Rancho Cordova with their Autism Spectrum Department.
Great things are happening and we are all excited and proud of our little guy. And Ian too! He'll start Kindergarten in August!! My babies are growing up.

Tuesday, January 1, 2013

IEP preparation

With 2013 beginning and 2012 behind us, I find myself finally satisfied with the way things are going for Jeremy.

Therapy is working. Jeremy picks up new skills everyday. Just two days ago he drew an A on his magnadoodle. It was amazing!!

Our first IEP meeting (individualized education program) is taking place on January 10 @ 2:30pm. I am kinda prepared. Have a few more things to read/research. I have a week! Wish me luck!